Katelyn (Ladybug)

Katelyn Corrine

32 Year Old Angel

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Katelyn Corrine, entered my life on a Sunday afternoon in on July 19th, 1991. I was 16 years old. she was a perfect baby from birth.. She walked at 10 months talked at full sentences at 1 year. and oh how independent she was.. I do I do mommy… i think those were her most often said words.. She was a happy baby and child always looking out for her little brother and always hugging everyone..
Her biological father was out of her life at 2 year old.. and I divorced him a year later… I raised both Katelyn and Mikey on my own ( with help from family and friends) until I met Mike. Katelyn asked me how soon she could marry Big Mike. (kate was 5) We all laughed and told Kate not for a while..
I married Big mike on Sept 25 1999. Kate and Mikey were so happy…
Life went on and in 2005 we welcomed Landon with open arms… Kate was so excited that we having a baby she jumped up and down and screamed!! 🙂 i think she was more excited than most.. We has two more little boys Shawn in 2006 and GabRayel in 2007.
Kate was present at Shawn’s birth and Gabe’s… She says she wanted a little girl with them both but the moment they were born she loved them.. She was a out spoken girl, she often could be found talking on the phone or hanging out with her friends on our porch. She was

leader and was always looking out for the underdog, and way always worried about people.
My sister noticed that Katelyn a developed a lisp.. i hadn’t even noticed.. I had noticed her Grades slipping from straight a’s to c and f…. We met with teachers and they said she want trying… I will most likely never forgive myself for looking at Kate in that meeting and saying “you are smart, you can do this, why are u not doing it.” I remember her say “mom, i just can’t get it it, i try but i can’t get it.” She was 15.
Kate’s brother Mikey was tested for hd at 16 years of age due to some of his behaviors, his test came back negative. He did not have the gene. Kate asked to be tested on her 18th birthday… I call Iowa city and we got it all set up.. 3 weeks later we were in Des Monies Iowa, Kate Mikey and I, as the genetics read us the results.. “Katelyn, I am sorry but your test showed your CAG count is at 58″… I remember looking at Mikey at Kate and hearing a buzzing in my ears, and my face got hot

I know many other have a higher cag count… but it was high enough…
that was almost 3 years ago… Kate forgot things.. she got mad at her little brothers so easily.. she had become singled minded .. but through this all her and Landon had always fight JHD… She sometimes got sad but most of the time she lived.. she laughed and smuggled and she lived… She said she was Katelyn who happens to have JHD… not kate with jhd.. She fought for her independence… She sayed she is living with JHD …. not dying with JHD… We all know how this story will end.. sad and  cruel..But yet we still prayed for strengths and love and a cure.. We fight for our children or grandchildren and those who lives have touched ours… I can’t say i understand or are even at peace with Kate’s JHD. I have however found people who’s lives have giving me hope and strength and love..
Kate will be 20 next week, and We will celebrate.. with cake and ice cream and all bbq fixings! and when I go to bed i will thank God for all blessings… even when it seems they are not blessings at all….

she also has a daughter named Nevaeh, she was bigger then Katelyn, whos at risk for jhd and hd.. she watched her Mommy get sicker. It’s really heartbreaking. Love withstands all. Thanks for reading about Katelyn… She is my one and only baby girl..(she will get mad when she see i put this 🙂 ) I love you Katelyn Corrine! Kate Loved to Read her mastiff dog Bean, Tortoises, the 60s, Flowers, Bright Colors, Bell Bottom Jeans and Peace. Kate lived her life to the fullest. She believed in family, God, and hope. She believed in living in the day and refused to be held down by this disease.

We survived and lived in our little world Because we knew our world would be forever changed when God called her home. Because it wasn’t easy to sit with her out on the hot days, not easy for her to try to eat in front of others … Its not what She felt like sharing an about her self. She slept in the late afternoons so waking her up was not an option We lived and are we are thankful for our lives and for her. We are private people and for me to even write this hard and painful. We have family that will not come to see us Because we don’t go to see them. It is not Because we don’t want to but Because we are struggling. We can’t just drop everything switch plans… It is not a option for us. Not for Kate or Shawn..There are great days and there were shitty horrible days. And there were somewhat ok days. So when people say oh just come over its not as simple as that. We sometimes just didn’t have the energy or ability to be what is needed from others, Because We have expended so much of it on our family. It is not a easy thing to grasp… In fact I pray that no one ever understands.. Because if you truly understand than your going through a living tragedy. And I do not wish that on anyone. We have so many many blessings ..we have faith… And we have one another and we have hope and we have prayers. My prayers have changed over the years… Prayers for strength for my boys to find peace when Kate leaves us. Prayers that Neaveh’s Daddy will always allow us to be a big part of her life, prayers that Kate was not suffering and that she could find peace when this times comes. My prayers were that our family could survive this Damn disease and the aftershock it creates. Are we strong?? Hell Yeah We Are.. We are stronger Because we have learned to be.. Because Kate was strong. Are we perfect, without fear Or anxiety, or anger? HELL NO… We are human after all.. But we were unable And unwilling to STOP FIGHTING for her and for us… For our family that is pretty messed up at times.. And pretty amazing at times… But mostly… We were just a family trying to deal with a shitty disease that was stealing our Daughter, their Sister and her Mommy away from for us and herself. There was a night after Kate was diagnosed that her “little” brother Mikey came to me with tears running and his voice was tiny as he asked… Mom why… She and me, were supposed to sit and watch our grandchildren play ..we were supposed to put you and dad in a nursing home that wouldn’t change your diapers (it was a long running joke) … Mom she is suppose to be with me…She is my big sister… Why mom why does she have to have JHD. Why?? I need her …I had no answers for him then… And I still have no answers for him or her 3 other little brothers… Landon who was so brave and strong for her… Who was so sure he would find a cure/treatment… And now struggled with his fears and anger with losing her, he asks for his family back.. The family we had when Kate was 18 when he stayed the night with her And they  would laugh and watch movies. Shawn who even with his struggled he was the first one to always help her, he understood her slurred speech and never tell her no, he made her drinks or helps her to eat… And Gabe who tried to help her eat.. I don’t have answers for them… But we tell them that we are together and we love each other. That we are stronger as family then we are alone. This song reminded me of these moments.. The moments that “The Boys” and Kate will not experience.. I know Mikey will tell his children about his big sister and who she was, the laughter and trouble they got into. I know Landon will hold, in his heart the times he spent with his “Sissy” at the apartment before she had to move back home. He will find peace in sharing and laughing about those times. I know Shawn will become stronger and braver, and more compassionate because of his actions with his sister. Gabe will find self-confidence to grow and develop Because he could help an adult. For me I find that my heart breaks when I think of the Boys .. They all had different relationships with their one And only sister. They are braver then me…

Dearest Ladybug…

God truly blessed me when he gave me a daughter on July 19th 1991….God knew your path. He blessed me with a beautiful little girl with sass and tomboy attitude who showed me the meaning of faith, love and family… You never stopped living, your faith has always been present and beautiful to see. You never allowed hate to touch you but always showed compassion and love. You offered forgiveness when most would be angry and love when hate would have been expected. You, my only daughter have shown me that 100% faith in God’s Grace is what living is about. It is because of you, I learned that life is gift, no matter how hard it is and we need to to live large, laugh loud, and believe with a passion. I learned that nothing in life is permanent and it’s beautiful that’s its not permanent. You taught me to take nothing for granted You showed me, that living and loving is a choice and that those things fill our lives with meaning. You taught me how to find my smile and laugh and how to fully live in the present You showed and taught me that love is a precious gift. And we must be compassionate to all. You taught me the meaning of the words: patience and gentleness. You showed me how to speak up for what’s important and right, to do the right thing, and offer a hand up to those who need it. You taught and showed me the meaning of strength and acceptance. You are stronger than I ever imagined I could be. Because of you, our family is closer and stronger ever.. Because of you, I take loads of pictures and videos now and your brothers hate me for it. But it’s ok they will deal with it. You taught me how to let go of pain so that I had room for peace. It is because of you, I know that grief is really love with no where to go. It is because of you that I know there is life beyond loss and in time we will be filled with joy and laughter. You showed me the meaning of faith. Heaven is not way up in the sky, but is a beautiful place filled with joy and I know we will meet there someday. It is an honor that I am your mama. I will love you always. Don’t worry about us. We will find peace, love and joy in life. I will help your brothers and your dad to find theirs. When you leave this world make sure that you give my mama a hug from me. And Grandpa Hansen. Love you always, Mama

Katelyn Corrine ….You got your angle wings. We love you sooo much. Dance Ladybug Dance July 19, 1991-March 27, 2024

Kates(Katelyns) Kronies

http://katelynhuntingtons.blogspot.com/2012_02_04_archive.html

https://www.porterfuneralhomes.com/obituaries/katelyn-sandbulte