Welcome To jhdkids.com Where You Can Read These Kids Stories And Learn More About JHD.. Kids Helping Kids With Juvenile Huntington's Disease and Their Families Alike The Juvenile Onest Of Huntington's Disease Sharing Personal Stories And Faces Of Kids For Awareness Helping Relating And Understanding
I married the love of my life he was a smart good looking Wichita PD officer, we feel in love got married and had two wonderful sons Justin and Patrick. Jim had been adopted so he was out of this world Happy I was pregnant when Jim had a accident that’s when my world as I knew it fell a part. I was 8 months pregnant with Patrick when the neurologist had me come to his office . I am in the nursing profession and I know what that means……… Not good He informed me that Jim had the disease and that my son and unborn child had a 50% chance of having it Justin had JHD, Patrick well he is married his wife knew he could have it or carry it. Justin fought a long hard battle. His Symptoms started at 17. He still went to college and played soccer. He had a smile on his face almost too the very end. He never complained and never gave up. He lost his speech. He passed at age 30. Both have been state level wrestlers .Both of my sons are great young men Patrick served are country and now is a prison officer.
Heaven has a new soccer player for God’s team. Aug 24, 1989-Sept 17, 2019.
Justin came into my life a few years ago. He brings a smile to my face every time i think of him!! That ornery smile when he THINKS he’s sneaky, the red in his cheeks when he blushes, & his face when he lights up from someone he likes coming into the room. Everone should be that blessed to have a child like that! Wish there were more Justins’ in this world! It would be a much much better place!! Feel proud Mom, you deserve it!!
I’ve known Justin since he was a little fella. He was so kind, friendly and full of life. Justin and Marcy continue to amaze me in the way they handle this disease with such grace and faith. Truly inspirational to anyone who believes in a Higher Power!
Justin came into my life a few years ago. He brings a smile to my face every time i think of him!! That ornery smile when he THINKS he’s sneaky, the red in his cheeks when he blushes, & his face when he lights up from someone he likes coming into the room. Everone should be that blessed to have a child like that! Wish there were more Justins’ in this world! It would be a much much better place!! Feel proud Mom, you deserve it!!
I’ve known Justin since he was a little fella. He was so kind, friendly and full of life. Justin and Marcy continue to amaze me in the way they handle this disease with such grace and faith. Truly inspirational to anyone who believes in a Higher Power!