Chloe Hayes (Warrior Princess)
Chloe was born on Jan 10. She’s the only one in Ireland with it that young so makes it tough feel very alone at times as we don’t have contact with her dad’s family or him when we broke up I was expecting Chloe at the time and only found out through a friend about her dad family didn’t tell me but I knew something with Chloe since she started school just got weaker all the time and lashing out and couldn’t master simple things god love her just heart breaking. I had to call to her dad’s family to ask if it was through as I would have to get her tested and they said they didn’t know about Chloe that her dad never said …We have lived in same town all these years. She suffers with emotional and anxiety and very severe behavioral out bursts and has scoliosis also. Her IQ very low now wouldn’t have the understanding only mind of 4/5 yr old really. her balance is very bad and speech and swallow too still manages to walk short distance try keep mobility going we use a manual chair when going out as not strong enough. She just got a feeding tube Feb. 7, 2017 one very brave JHD warrior princess Chloe x
Pink & purple. And is a 1Direction fan and Ed Sherin and Taylor Swift fan too. Loves spending time with her two dogs Rooney & Tyson. Loves shopping for clothes getting new style and wants to be a beautician and hairstylist and have her own nail bar too when older, she loves her dolls too and make up and art.
July 3, 2018 Chloe so so restless all night I can't sleep. JHD I truly hate it Making awareness for JHD/HD as I am caring for my JHD warrior princess daughter Chloe and this life limiting illness is taking her from me bit by bit it just breaks my heart knowing I will lose her to this awful disease
July 10, 2018 Just home with my JHD warrior princess daughter Chloe from Temple street hospital up for EEG & very proud of her as I know it was hard for her to do different things it just breaks my heart seeing how the horrendous JHD is taking her life bit by bit.....But on the other hand we went for bite to eat before setting off home on a wonderful scenic adventure had some great laughs too, which I must say massive thank you to my sis your an absolute scream really can't wait for a trip to Kerry....... Be lots of laughs and memories to make. Just wish things were so different with my baby girl, but it not to be so I must keep strong and get strength from somewhere as its getting harder as time passes.
August 4, 2018 After an eventful afternoon my JHD warrior princess daughter Chloe had a Nasty fall ended up trip by ambulance to hospital but been a great patient very happy out just under observation for now hopefully home soon very brave warrior