Bryan (Bry Bry)

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Bryan James Matthew Mabry

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bryanBryan James Matthew Mabry was born November 2, 1987 in Oxnard, CA. Grew up in many different places as his dad was in the Navy. Dad’s name is Ed (he has HD), mom is Patty and my little sis is Angela. Before I was diagnosed with JHD in 2009, I enjoyed cooking,  I now live with my mom in New Mexico. I am now 25 years old. 

bryan (2)About Bryan

Happy Go Lucky! He Enjoyed Cooking when he was able to. I always wanted to be an Archeologist. My favorite city I ever lived in was San Diego. I like warm weather and not the snow so much. We have 15 animals, 4 horses, 3 goats, 6 dogs and 2 cats, they are all rescued.

Some of his favorite things include: favorite movie – Back to The Future, favorite color – Green, favorite band – Panic at The Disco, favorite series – True Blood, favorite thing to do is play my PS3, I enjoy watching the Albuquerque Isotopes baseball team, going to concerts Rock and Country, I also enjoy going to Rodeos and going to the PBR, I like going to the Casino. He lives 2000 miles away in New Jersey now in a home to take care of him.

bryan-58Patty (Bryan)- I am a wife and mother of two children. Bryan is my son and Angela is my daughter. My husband and I met in high school in 1985. We married in 1986 and I followed him as he pursued his Navy Career. In 2001 my husband was diagnosed with Huntington’s Disease. He retired and was medically boarded out of the Navy in 2003, we then moved back to our home state of NM. Because of the progression, Ed was placed into a nursing home in 2008. In 2009 my son was arrested, after being released from jail, he moved back in with me. I could sense something was terribly wrong, in fact I had those feelings since his early teens. We went to see his primary care physician and he referred him to the Neurology clinic at The University of New Mexico Hospital. After meeting with many doctors, Bryan was given the genetic test for Huntington’s Disease. A couple weeks later, we were called back for the results, POSITIVE for Juvenile HD was what we heard. I somewhat felt at ease, I think because deep down in my heart I already knew what the answer was going to be. 5-7 years is what I was told, how does any mother absorb that sort of news? I knew at that time that I had the responsibility of caring for my son for as long as I could. Watching him progress the past 4 years has been the toughest, seeing the daily changes with his body and mind have been very difficult. Yes, it’s hard when it’s your spouse but when it’s your child there’s just something different about that. the past few month’s have been hard on him, his gait and speech have declined substantially. This past March my daughter was tested as well and thank the good Lord her test was negative. Disease is never fair, even less fair to me when it’s a child. What do I think of JHD, I think it’s an ugly monster. We have to remain hopeful that some day there will be a cure.

I may be terminal but Huntington’s will not be my ending. In the end, when my body has endured all that it can, it will be where my story began. Live every day as if it’s your last. Nobody is promised tomorrow. 💙💜-Bryan Mabry

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