Aliyah
19 Year Old Angel
Aliyah was born on January 28, 2004-September 12, 2023 She first started showing behavior changes around age 4 and was diagnosed with ADHD and ODD by age 5. At age 8 her speech became slurred and over the years it has become more difficult to understand her. Last year in 2014 her clumsiness and balance issues became a major concern. Her psychiatrist sent her for a neuropsych eval where she was referred to genetics and then neurology. On August 13, 2015, I received Aliyah’s results that she tested positive for JHD. My worst nightmare had become true. She was now being referred to 6-7 other specialists. Aliyah had just started 6th grade at her new middle school and seemed to be loving it. She had been making new friends. Aliyah was still able to walk and talk, and was hoping to help her keep her strength up so she could remain strong to fight as hard as she could. Her arms and legs seemed to be a little stiff, she had the itchy face and mouth movements. She had seen occupational therapy once a week and soon was going to be receiving physical therapy services as well to work on her balance. Speech therapy would’ve been starting soon too. School had been accommodating by teaching her how to use the assisted technology devices for when the time comes that she needed them.
About Aliyah
Aliyah was full of personality, was always giggling and cracking jokes. She was a girly girl, she probably had about 100 lip glosses and loved to carry a purse around with her. She loved to play with her friends, play with barbies, color, watch movies, listen to music and play on her Ipad. Her favorite singers were Beyonce and Katy Perry. 
Aliyah is in love with anything Disney princess. Her favorite princess was Aurora (Sleeping Beauty) because her dress is pink and Aliyah’s favorite color was pink. She loved her family and friends very much and was a very caring, sweet and genuine young lady.
https://www.gofundme.com/f/honoring-and-remembering-princess-aliyah
JHD Initiative 
Hi Aliyah. Such beautiful and so many smiles. 🙂 I’m happy you like school, are having fun and making so many friends this year. Love – Aunt Sandy
Aliyah sure enjoyed her vacation to Disney World, Universal, and swimming with the dolphins.
Jen your a wonderful Mother with the.patience of a saint. Keep up the good work you do
love you both so much!
Hi Aliyah,
I’m looking forward to seeing you soon when you come up north with momma and Rhiannon to pick me up. I know you’ll be a big helper with Rhiannon for mama. You’re such a great helper because you love helping mama. Keep smiling Princess Aliyah 👑 I love you so much ☺
Love Grandma
Aliyah,
I love you so much, pretty lady. your smile brightens up a room just as well as your laugh does. Growing up with you is such a pleasure! Watching your sticker collection grow along with the extra inches i wasn’t gifted with. You’re so special and one of the brightest stars that have shined upon my life. I’ll never have a friend like you! you always make me laugh and make me feel so loved with the warmest and tightest hugs, you’re my absolute favorite princess.
Maziyah ❤