Aidan’s Army 5K Walk/Run For JHD August 11th

Posted on June 18, 2013 by xjaceyx — Leave a comment ↓

Aidan’s Army 5K Walk/Run for JHD is set for August 11th from 8:30am-11:00am In Iowa. To register you can go to the URL:

 http://aidansarmy.eventbrite.com/

Aidan and his family have a long, tough journey ahead of them. Aidan’s mother Denise has had to go from full-time work to part-time to care for Aidan.  Funds from this event will go to help the family with unpaid medical expenses and a service dog for Aidan.

EEG Getting Ready For The I.V.

EEG Getting Ready For The I.V.

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Aidan Going Into The Hospital

Posted on June 17, 2013 by jhdmom — Leave a comment ↓

Tomorrow, Aidan & I will be heading to the hospital for a 3-5 day stay for Video EEG monitoring Wish us luck & I hope that Aidan cooperates, so we can get this seizure activity under control. Then maybe we’ll be able to get some sleep at night.

-Aidan’s Mom Denise

All Smiles!!

All Smiles!!

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Loving Laura Today On Her Angelversary

Posted on June 16, 2013 by jhdmom — 1 Comment ↓

Laura’s Angelversary’s is June 17th.  She was 24 years old. 

Laura’s daughter, Kathleen also had JHD.  Rebecca Rose took care of her daughter, Laura, while helping care for her granddaughter, Kathleen.  Sadly, they both passed, but they’re together again. We’re thinking of Laura, her family and friends with love on your Angelversary.

Laura

 

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Play dough Balloons

Posted on June 15, 2013 by jhdmom — Leave a comment ↓

To Strengthen Hands, Just put the play dough in and tie the balloons, decorate them with sharpie, pom poms, googlie eyes

photo-100

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Sensory Bags

Posted on June 15, 2013 by jhdmom — 1 Comment ↓

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A gallon sized zip lock bag. Hair gel. Then I bought little rubber toys like bugs, rubber band bracelets…. Also sparkly confetti. I even found confetti that say”Elijah”. You could put anything in it. Like marbles… Etc. Then I used duct tape to seal it. I went all around the edges with the duct tape.

-Daniella

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Youtube Videos Of The Kids

Posted on June 11, 2013 by jhdmom — Leave a comment ↓

http://www.youtube.com/user/curejhd

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Happy Birthday Kayleigh!!

Posted on June 9, 2013 by xjaceyx — Leave a comment ↓

kayleigh

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Aidan’s Wish
Aidan's Make A Wish!!September 15th, 2013
2 months to go.

Click On Princess Karli Belle's Ericas and Jaceys Picture For Their Page

Click Aidan's Picture For His Page

Click Beth (Betty Boop's) Picture For Her Page

Click On Brandon (Buddy's) Picture For His Page

Click Bre'don's Picture For His Page

Click On Brenden (Dino's) Picture For His Page

Click On Bryan (Bry Bry's) Picture For His Page

Click On Super Byron's Picture For His Story

Click On Cailey Cupcake's Picture For Her Page

Click On Cameron (Cami's) Picture For His Page

Click On Lil Cory's Picture For His Page

Click On Crista's Picture For Her Page

Click On David's Picture For His Page

Click Dominic's Picture For His Page

Click On Emily (Bubbles') Picture For Her Page

Click On Gabriel (Gabey Baby's) Picture For His Page

Click On Giuliano's Picture For His Page

Click On Heather's Picture For Her Page

Click On Jamie and Kyle's Picture For Their Page

Click On Jason and Sonia's Picture For Their Page

Jessica (jj) and Erik

Click On Judy (Ju Ju) and Carissa (Rissa's) Picture For Their Page

Click On Karissa's Picture For Her Page

Click On Katelyn (Ladybug's) Picture For Her Page

Click On Kathleen (Bones) and Laura (Lola's) Picture For Their Page

Click On Kayleigh's Picture For Her Page

Click Keely (Sweetie-Pie's) Picture For Her Page

Click On Kelly's Picture For Her Page

Click On Kendra (Snowbunny's) Picture For Her Page

Click On Kieran The Kinder Kid and Bailey Wailey's Picture For Their Page

Click On Kodai (Kochan's) Picture For His Page

Click On Leon's Picture For His Page

Click On Liam's Picture For His Page

Click On Little Debbie's Picture For Her Page

Click On Lucas (Lukey) and Christopher Robin's Picture For Their Page

Click On Meghan's Picture For Her Page

Click On Meaghan's Picture For Her Page

Click On Mia Mouse's Picture For Her Page

Click On Olivia (Livie's) Picture For Her Page

Click On Patrick (P.A's) Picture For His Page

Click On Rachel's Picture For Her Page

Click On RayLynn (Angel's) Picture For Her Page

Click On Rikki Rocky's Picture For Her Page

Click On Sarah (Little Bird's) Picture For Her Page

Click On Shane's Picture For His Story

Click On Terry's Picture For His Page

Click On Ty's Picture For His Page

Click On Virginia (Ginnia's) Picture For Her Page

Support Groups
Facebook ---------------------------------------JHD Family For Those Related To A JHD Child http://www.facebook.com/groups/154030267967154/ ----------------------------------- Groups and Support For More Groups and Fundraisers http://www.facebook.com/groups/467392109939265/ ------------------------------------ Potential Treatments and Cures For HD and JHD http://www.facebook.com/groups/410217805688534/ ------------------------------------------------------------------------------------------------ Yahoo ------------------------------------------------------------------------------- Huntington's Support Group With Club Chats http://health.groups.yahoo.com/group/huntingtonsdiseasesupportclub/ ---------------------------------------------------------------- JHD Caregivers Caregivers Club http://health.groups.yahoo.com/group/JHDCargivers/
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