from the uk school resources juvenile huntington’s disease
stanford hopes used a lot
Study identifies previously unknown proteins in Huntington’s disease pathology.
hdsa
after a doctor says what the treatment should be she went to the hdsa who put her in contact with professionals to help appreciate and never speak mean because they want to help
caregivers, doctors, therapists, nurses, etc
reading medical records keeping track of what everything meant
hdsa caregivers guide for first diagnosis
doesnt have to say jhd specific there are so many rare diseases in jhd that you can look up the issues separately
old time caregivers, jean millers help, called everywhere, experience
united cerebral palsy for speech and communication
cystic fibrosis for weight and supplements
reviewed diagnoses and why it fit not taking the doctors word unless the doctor explaining why the defect.. specialized doctors always willing to talk.. the doctors extensive experience
every medication can influence can decide if a child can get in a trial, so everything prescribed is necessary otherwise it might impact their health down the road
people who couldn’t help they passed on to someone who knew the answers. Leading to finding jhd isn’t getting all the things that it should get.
Wow dystonia and dystonic seizure info
https://www.medicalnewstoday.com/articles/171354.php
Paroxysmal Dystonia
https://jaceysjhdjourney.com/2019/05/10/paroxysmal-dystonia/
Jane Mervar: More Help For Juvenile Huntington’s Disease – Sign the Petition! Here
JHD Initiative 
One Reply to “Resources Learn More About JHD”