Kendra (Snowbunny)
27 year old Angel
Kendra’s grandfather took his life because he had HD and her father passed away from HD in 2009. Her aunt the year before that. Her cousin who is in her later early 30’s has Adult HD. Kendra was born on Sept 20, 1997. She was diagnosed in 2011 but I knew way before her diagnosis that she had it. I just didn’t want to admit it at the time. She has had a really hard time at school because of bullying and of course no one knowing what Huntington’s Disease is let alone JHD. I had met with the school a number of times and kept trying to educate them on the disease. It is slowly getting better. I had finally made contact with a social worker that works for the HD foundation and she had seen Dr. Sanchez who has researched HD for much of his life. She loved to Dance Listen to music and Text
Kendra was progressing quite quickly and I just wanted her to be as happy as she could be while she could. She was a beautiful, loving, funny girl and had so much to offer. I hoped that a cure will be found in her lifetime but I knew to not get my hopes up.
Kendra had myself (her mom), 2 sisters. a neice and a brother in law that were here giving her support Anything I can do to help with the fight or awareness of JHD and HD I will do. Kendra has a daughter and just wanted to spend as much time with her as possible. Kendra passed away on May 27, 2024 at only 27 years old.
Thank you very much for all you are doing. 🙂
Sincerely, Tara Small
JHD Initiative 