Joost Roorda

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Pleasant, this is Joost. A naturally cheerful, humorous and caring boy. A boy who loves socializing, of togetherness, of tough guys things, making fun. Throughout his childhood love of Lego already, but now he is bigger gaming and watching TV his favorite pastime. Fond of animals and farm life.

Joost born on Jan 20, 1999 lives with his brother Gijs with his mother and (second) father. Four years ago from Friesland moved to the beautiful Limburg. Joost is currently to special secondary education in Tegelen. He’s with the youth fire of Horst aan de Maas and he goes regularly to care farm Wienes in Hegelsom. Occasionally Joost is a weekend stay. He also finds boulder-rough!

JoostRemarkably, the Joost not easy perishes in life. From a group of three striking child in school. They found him in a group in two and a super excited child, group three was that annoying enthusiasm and his behavior was hyperactive and very present. At that time his father was seriously ill. Could no longer work and came home to sit.Later been his father to day-trip destinations. Eventually, following a shooting in the nursing and Joost his father deceased to the effects of Huntington’s disease in 2007. Joost shows behavioral disorders in this period. Not surprising perhaps when you have to make it at this age. Much

Joost his behavior means that he is being investigated. (2009) The diagnosis was PDD-NOS. An autism related disorder. There are also characteristics of ADHD. With counseling and medication is by Joost subsequent years. Just moved to a new environment and he goes in Horst also first to special education. This appears to be a good step. Joost is a few weeks another child. Or rather, he is himself. A cheerful boy, caring and going regularly on his sceelers to school. Joost has been a fine life.

The club wants to Joost unfortunately not succeed. He has tried everything but could not find the connection. The youth fire of Horst aan de Maas he’s really enjoying. It is him that things are not as easy to succeed him as the other children. The atmosphere in the group, he loves it. It’s nice to belong somewhere.

joost (18)Joost goes to special education. Since September 2011 Because home and school are still experiencing problems with his behavior and because Joost Joost ‘non-being nice’ seems to be a route is decided to proceed with an ambulatory autism team. (2012) This is due to a number of problems, including motor problems (writing and walking), psychological problems (depression, negativity) and cognitive problems (learning seems harder to go). Joost is significantly screened. It finally comes the high word out; Joost has probably something neurological.Looking at the genetics of Huntington’s disease is feared the worst. The pediatric neurologist at the University Hospital in Nijmegen via DNA investigation that Joost indeed at age 13 has Huntington’s disease. Probably the cause of all the concerns he has all his life. In any case, the utmost care for the rest of his life.

May 31, 2018- Joost is now 19. It is still pretty good to circumstances. Most important is that he is happy and satisfied.




Joost has some great passions. These are;

  • Animal care
  • Truckrun
  • Gaming
  • Lego
  • The young firefighters Horst aan de Maas
  • Watch TV

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