Super Byron

Byron Anthony Hare 24 years old

April 8, 1993

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I can do all things through Christ who strengthens me. Phil 4:13

Byron is the son of Trey and Traci Pratt and is a wonderful big brother to his sister, Megan Sisco. Byron has unknowingly been harboring this disease since birth. Juvenile Huntington’s disease, or JHD, is an inherited disease that causes the progressive degeneration of nerve cells in the brain. Huntington’s disease has a broad impact on a person’s functional abilities and results in dementia, limited movement, cognitive and psychiatric disorders and is ultimately fatal.

ByronByron’s symptoms began at the age of 5 (now 18 yrs old) with some minor ‘ticks’ such as blinking, sniffing and clearing of his throat. But other than those little ‘ticks’, Byron was a perfectly normal, happy child. He had complete mobility, played football, soccer and rode his horse daily. Though the symptoms began on a very small scale, at about 13 years of age Byrons movement seem to be noticeably slower and more rigid. And, as time went on, he began to lose focus on the smallest of tasks and having bouts of depression. Byron has ALWAYS been a very well behaved child. He has never caused any trouble, but he began to have these fits of emotion, not rage or anger, just outbursts of tears and frustration. Amidst all of this, he also seem to be losing his ability to problem solve. byron (118)Today, Byron has difficulty with balance, decreased mobility (rigid/mechanical in movement), speaking and he is having some dementia. The symptoms will progress and he will ultimately be unable to perform simple every day tasks, including his ability to talk, walk and care for himself.

There is currently no cure and no medications that will successfully slow the disease down. Average life expectancy for JHD is 10 – 15 years from onset of symptoms. We are now organizing some benefit efforts to assist in Byron’s medical bills and care. We are currently holding two separate fundraising efforts. Firstly, we are having an online Stallion Breeding Auction. This auction will consist of some of the top barrel racing sires in the industry! 

About Byron

Very witty…loves to laugh. Loves to joke And very positiveByron

Youth World Barrel Race….NFR Trip to Vegas ….Meeting Rodney Atkins….His graduation day….

Horses are definitely his favorite and his dog Arlis….and maybe the favorite memory being….um….the Youth World Barrel race because he got to carry the US flag during the national anthem.. His Favorite Color Is Blue.

byron (121)byron (126)Byron’s passion is riding, he loves horses, even though he’s sick he’s not letting it stop him from doing what he loves!!

Contact Traci (his mom) at piggin_string@yahoo.com

Byron’s Website

http://ridingwithfaith.com/forHim.html

Byron2.jpg

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Welcome To jhdkids.com Where You Can Read These Kids Stories And Learn More About JHD And How Different It Is In Kids Than Adults
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