Shocking JHD Stories
WHY I WILL NO LONGER SHOP AT SAM'S CLUB!!!!!
I went in there today as I do just about every other week with Bryan, we get to the entrance and Bryan gets into one of the motorized chairs as he has a difficult time walking these days due to the progression of his HD, well Joe the in-compassionate guy at the front proceeds to ask Bryan if he really needs the chair (BTW there are about 4 more just sitting there unused), I get up there and say excuse me what did you just ask my son, he then tells me what he said then tells me well why does he need a chair, I just saw him walking in the door. I said justbecause someone does not look disabled doesn't mean they aren't. I asked him ifhe asked everyone that and if he had ever heard of The Americans with Disabilities Act. Talked to the manager and was just as ignorant. I was so mad, I will no longer do business with that store and maybe take my business to Costco. Do I really need to drape a banner over my son that say's I have Huntington's Disease????? No wonder people lose it!!!! So sick of ignorance already.
Hugging Dotti and Sparkle Karli Got Me and She Kissed The Heart and Picked Them Out.. I was Holding Them as Tight as I Could Wearing My Special Glasses For The Light and Went Into the Grocery Store and a Worker Just Stared Like Her Eyes Were Glued To Me I Was So Uncomfortable My Body Started To Twitch My Shoulder Jerked It's Crazy and if remembering today wasn't bad enough the pain i have everydayand the disease that just doesn't care a UTI wtf!! What did I do?! C'mon It's Uncalled For my eyes started wandering in the store and the lady says 'what are you looking for?!'
While I know that Aidan's symptoms are visible, it is still hard to hear from complete strangers. Tonight at Sis' softball game, a very, well-meaning concession stand lady told me she was concerned about Aidan when he came to the stand twice & both times he seemed pale & had tremors in his hands. I explained to her that he has JHD & she was very sweet and I think her concern was genuine. I just wonder what others think, but don't say. I worry about kids making fun of him (he has told me that kids have made fun of the way he runs). I hate JHD!