More Kids With JHD

More Brave Kids With or Who Had Juvenile Huntington’s Disease

Timothy James and His Brother Christopher

My son Timothy James Forever 18 graduated 2 years early passed away a month after they let him graduated. His brother Christopher also had jhd he’s now Forever 28. Together Forever In Heaven

Scottie Glunz

My son Scottie. Forever age 22. Passed away from jhd on 2/14/21. He loved movies (Star Wars, Fast & Furious, super hero movies), video games, the New York Yankees and The Walking Dead. He liked listening to music and building things with Legos. He played baseball and was a Boy Scout. We will forever miss his smile and his unfailing sense of humor

Saskia

Saskia was born on February 3, 1992, directly with her feet first. She grew up as a happy girl with beautiful long red hair. Around her fifth birthday her father turned out to have HD. Father and mother were already divorced by then, but Saskia saw her father often, like many girls, she was also a daddy’s child.
Around Saskia’s tenth birthday she had some motor disturbances, but these were dismissed as growth. Around the age of fourteen she became depressed and did not feel like going to school (where she was severely bullied) and stayed at home.
After nine months of investigations, Saskia was finally diagnosed with JHD. From free spirited teenager she became a homebody. Her father died at seventeen after years in a nursing home (especially for HD)Her biggest dream was to become a soldier. Computers also interested her.

Her illness was difficult, after her diagnosis she was the tenth child in the Netherlands who was known to have JHD. She has gone through all the stages of the disease. Depression, Psychoses, Epilepsy, tics, Pneumonia, Swallowing and speech problems. But Saskia and mom agreed on 1 thing she stayed at home. And that’s how her life ended on December 3, 2017 born at home, Died at home. She was 25 years old. Of course she is now at home (in her own computer which has been converted into an urn).

Wyatt Niemann

Wyatt was A real life superhero! He bravely faught juvenile huntington’s disease and passed away at 17 years old. Helping Wyatt with his Eagle Scout project was a joint effort with wrestling and basketball…stuffed animal drive for the Beacon Center. His make a wish trip was to the National Aquarium in DC. It’s overwhelming how good people were to Wyatt. One of Wyatt’s favorite days of his life on earth was Meeting The Bengals. Today he is celebrating in heaven as his team has made the Super Bowl.