Miranda has always been beautiful, sweet and full of life. She was a select soccer player for several years and a demon on the field. She also played volleyball.
She has a beautiful 6 year old daughter. She was diagnosed at 19 while pregnant. Shortly after her father passed away from HD. Miranda is a fighter. Her motto is “if you don’t use it you lose it ” we live by that in our home. She works hard to maintain her Independence and she does struggle…but she never gives up trying.
August 1, 2019 I NEED TO VENT! yesterday my daughter wanted to go to the grocery store with (25 with JHD). she was having a really good day she didn't want to use her chair or take her walker. Which was fine, when she does this I have her push the shopping cart for support. Well she got about a half of isle ahead of me. I hear this little girl ask her mother, " mommy, what is wrong with that lady,? Why is she shaking so much?" To which the mother replies " she is probably on drugs!" 😠 My daughter also heard the exchange. I cold see my daughter's really good day just crumble. I was immediately angry. I chose not to let my anger get the best of me (it would have upset my daughter even more.) I did decide to use it as a teaching moment. I kneeled down to the 6year old right in front of her mother and told the little girl "no, honey she isn't on drugs, she has a disease in her brain that causes her to shake, she can't help that. It's called Huntingtons Disease, maybe your mom will Google it and tell you all about it. I also told the little girl that my daughter's name is Miranda and she is very sweet. While the girl walked do the isle to say hello to Miranda. I very nicely explained to her mother that making judgements about people who you know nothing about is very unkind and kindness is free. That raising a child to be kind is far better than raising them to be judgemental. I also explained to her that Miranda is very self conscious about the shaking and because of her comment it will probably be a month before I can get Miranda to come if of our house. 😠 I'm still mad about it. Ignorance us never an excuse to be hurtful. Sorry it's so long, but I really needed to get it off my chest so I can let it go.