Macie and Kylie Olson
13 Year Old Angel
Macie started showing symptoms around April of 2013. First it was she forgot how to ride her bike from 6 months prior when I had to put the bike away for the winter. Was sent to a neurologist in January of 2014 and he did a mri and eeg and found that she was having seizure activity and low iron. She was a champ through it all. May 8th 2014 was the day we found that with a cag of 99 that she had JHD. A friend of mine had gotten in touch with make a wish during that time and they contacted me a week after finding the results and met with us in July and we took our trip to Florida in September right after she turned 7.
She was in the 3rd grade. In June of this year she stopped wearing her braces cause they were making her tired, we started her on aquatic therapy to help loosen her muscles and it was working she didn’t walk on her tippy toes as much. Her sister Kylie was diagnosed may 28th 2021. Her cag count is 62.
About Macie
Loved the movie Frozen especially Elsa. Her favorite colors were pink and blue. Wanted to be a vet when she grows up. She loved horses and butterflies. Sept 7, 2007-April 3, 2021
About Kylie
She was born on April 7, 2005. Her favorite colors are Black, blue and purple. She likes cats and dogs, her favorite animal is a llama. She just completed her sophomore year of school.
JHD Initiative 