Beautiful Lily-Mae has been diagnosed with childhood onset of this cruel disease at only 6 years of age. She was born on August 8, 2013. Lily and Luna both have no idea that lil is poorly or what this means. So we ask you to be sensitive if you speak to us with the children present or if u tell your own children. lil has the same hopes and dreams as any little girl and i want her to still believe she will grow up and have babies and be a ballerina. Her favorite colors are purple and pink.