Kayla Bond
21 year old Angel
Kayla was Raised by her mum (Rachel and step dad Daniel) Kayla’s biological father had HD and died when Kayla was age 7. As Kayla started her Primary school years, Kayla was falling behind at around grade 4, Rachel ended up taking Kayla to the drs for some tests at the end of grade 6 only to find 3 yrs with no answers, yet the answer was right in front of them the whole time as on first appointment you have to fill out medical history which HD was on there for her father’s side of the family. Kayla was then diagnosed with JHD at around yr 7, so in saying that symptoms where showing when Kayla was 7/8yrs old. Kayla was attending a local high school, but with her constantly falling over and hurting herself with having JHD they decided it would be best for Kayla to attend a special school, more for kids like Kayla and other disabilities, Kayla had been at her new school for a year now and fit in great she had friends. Kayla has a younger sister her name is Hayley who loved and adored Kayla. December 6th, 2002-Jan 4, 2024.
Kayla’s progression with JHD had worsen alot more more frequent seizures, the medication had stopped working now on some new ones, Kayla had a few goes at Botox for her arms and didn’t require a wheel chair for long walks or even just a walk to shop, Kayla used her chair at school all time, she could walk but aided buy her mum or carer. Kayla had outbursts and carried on a lot, she also had a set routine on how she liked things, she use to have a set routine for breakfast but that had changed now due to feeding tube, she had a set routine for bed and if not done she would carry on until it’s done. Kayla i was almost 17 and her mindset was basically of an 7yr old her speech is worse stuttered alot she didn’t remember much from her childhood, Kayla knew she was dying from JHD, she didn’t show really much emotion on that, I’m sure she was scared and had really no idea what to do. Kayla had a feeding tube as she was constantly chocking on food, she had test done showing food was going down wrong way and making her aspirate. For her own safety this had to be done.
Kayla was slowly going down hill, and we would never know when her time was up, Kayla’s mum Rachel just liked to make memories for them memories they can cherish. She recently attended her Deb at school which she looked like an absolute angel. They went to Disneyland Kayla’s Nanna and pa made Kayla’s wish come true. She got a wish through starlight to the sence of home and away got to meet her favorite actresses. Kayla was an inspiration her smile was so beautiful and warm, she was loud and could make you jump out your skin, she loved to sing and watch her favorite shows like the greatest showman, high school musical, there was just something so special about this girl, beautiful kind loved babies, loved her family so much. Kayla loved horse’s and Unicorns for Kayla’s 16th birthday Rachel organised a horse and carriage for her birthday. Her favorite colors were Blue purple and pink. Loved home and away. If there was one wish I could give her it would be the ability to see herself through her eyes because she was just a beautiful soul.
JHD Initiative 