Jay Hersho (Jaybird)

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Jay Hersho (Jaybird)

16 Year Old Angel

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jay (137)Jay(Jaybird) Hersho is the sweetest most loving young man I know. Born on Aug 23, 2004-Dec 3, 2020.. With one of the biggest hearts. He loved giving hugs, and once you got to know him, you will have a friend for life. Jay loved fishing going on hikes, swimming and playing with his cousins and friends. Though we don’t do much of that lately. I would say his favorite thing to do now was a days is hanging out with his cousins. They are so special to Jay. They gavee him so much love and affection. Jay has a great support system from Grandma to Nana to Aunts and Uncles and cousins,and friends. Jay’s little brother Sean is his best friend and vice versa. Sean is amazing with Jay and is my biggest helper. Neither one of these boys deserves this cruel disease in there lives. Jay was diagnosed with JHD on January 8th 2018, he was 13. We noticed symptoms,looking back from the time he was in kindergarten. It was little things. Learning problems in school, then falling alot, some little problems with speech. jay (3)He was first diagnosed with Pervasive Developmental Disorder, a type of autism. He hit a growth spurt one summer and we noticed a curve in his spine. After seeing a ortho doctor and learning he has scoliosis, and me complaining of him falling alot he referred us to see a neurologist. Jay’s first MRI read as Juvenile Huntington’s Disease. There was no one on either sides of our family’s that ever had Huntington’s disease that we knew of. So after many test and two years later. We took that last dreadful blood test. About a month later it came back positive! Our heart’s shattered,devastated. I still have days where I wonder how can this be real! Then the realization that me and the two other people in the room were also at risk. Now I know this cant be real! Jay’s dad is now showing symptoms and his brother is at risk. Since getting Jay’s diagnosis he had seizures,a very hard time walking,and talking. Swallowing become very difficult to along with alot of pain and dystonia. Jay was the jay (37)Strongest and Bravest kid I know! My Warrior when he should have just be a kid. When I feel like I just cant do it I look at him and know if he can go threw the worst of it then I must be right by his side. Jay smiled and laughed every day. Its unimaginable to see your child thriving then all of a sudden going back to needing full time care, words can never really express my real emotions. This is why we need a cure! To help these children never have to deal with symptoms of Huntington’s disease!


Jay’s Journey




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