Jamie and His Brother Kyle
24 Year Old Angel
Kyle and Jamie both have/had Jhd with very high cag counts. They got the affected gene from there biological father. I was not told that there was even any hd in there family, it wasn’t until I was 8 month pregnant with Jamie that I found out their dad had it, so needless to say I am and always will be very angry with that family. As they knew that hd had been in there family for 3 generations yet didn’t think it was important to tell me!!! Can you believe that??
I’ve been with my husband mark for 14 years now, although he is not the boys genetic father he is the only dad that has ever been there for them and brought them up. We also have 3 daughters together Anastasia, Imogen, and trinity.Both boys are taking the diagnosis very differently. Jamie had a smile on his face every day and gave his best shot at everything he tried. Where as Kyle who was born on Nov 10, 1992.. is in a constant grump 24/7. I am dreading what the future holds. I love all my children and it pains me to think what this awful disease is doing to my two sons.. My love goes out to you and your family. X
December 28, 2018- I can’t write myself right now so my mark has wrote this for me. My heart is breaking so much right now 💔I’m sorry to have to tell you like this but unfortunately at 10.40 am this morning Our beautiful son Jamie passed away at home with all of his family and friends by his side, he was not in pain and the last words he heard before he got his wings was that we all love him so much and that we know he loves us back just the same. X Dec 6, 1994-Dec 28, 2018.
JHD Initiative 