Jamie and Kyle

Jamie and His Brother Kyle

24 Year Old Angel 30 Year Old Angel

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Kyle and Jamie both had Juvenile Huntington’s Disease with very high cag counts. They got the affected gene from there biological father. I was not told that there was even any hllld in there family, it wasn’t until I was 8 month pregnant with Jamie that I found out their dad had it, so needless to say I am and always will be very angry with that family. As they knew that hd had been in there family for 3 generations yet didn’t think it was important to tell me!!! Can you believe that??
jamie and kyle (4)

I’ve been with my husband mark for 14 years now, although he is not the boys genetic father he is the only dad that has ever been there for them and brought them up. We also have 3 daughters together Anastasia, Imogen, and trinity.
Both boys were taking the diagnosis very differently. Jamie had a smile on his face every day and gave his best shot at everything he tried. Where as Kyle was in a constant grump 24/7. I was dreading what the future holds. I love all my children and it pains me to think what this awful disease was doing to my two sons.. My love goes out to you and your family. X RIP Jamie Dec 6, 1994-Dec 28, 2018. RIP Kyle Nov 10, 1992- Nov 22, 2022