Erin Wade 24 Years Old
May 18, 1992
This is Erin She is 24 years old and was diagnosed at the age of 17. She graduated from high School, but had difficulities in her last year. Her father also passed away her last year of school which was extremely hard on the family. After her father passed away, and her grandmother before that, She wanted to be tested. I knew what the precautions would be, but she was adamant, So we started the journey of doing the blood work to test for Huntingtons. It takes awhile for the results to come back and there was a lot of counselling involved before they would give us the news. Well we got the horrific news she was positive and her Cag count was high as well so I knew she would start showing symptoms far earlier than her father did. Her father was 53 when he died and her grandmother was in her 70’s. By the time her grandmother knew she had this disease she had 5 children who also had children, and they had children. So it was running rampant in the family. 4 of her children were diagnosed as well. Erin cried and cried and I Assured it everything was going to be ok. We would get through this together and we will find a cure and so our journey began. She is now in a wheelchair, She has Obsessive Compulsive disorder, can no longer dress herself and her motor skills are very limited. I ended up having to take time off work and will now have to retire to care for her. She remains positive through all of this and never stops smiling. She always has a smile on her face, People say she is so beautiful and loving.
She played Rugby, volleyball, in highschool and had many friends. She now has very limited friends because she can no longer do the things healthy adults do. Her hopes of having children and getting married have all gone. I started the Pie in the Face Challenge for Huntington’s in Canada and it has taken off really well, so that awarenss can be raised and donations can come in for Research and Drug Trial Testing. Erin also has Ulceritive Colitis, which she has infusions for every 8 weeks. It is very hard to watch her go through this as well as they can never find her veins and
usually have to poke her several times before they can find one, but still she never says anything. She is just happy because I always take her for lunch afterwards. We continue to have hope and I spend everyday with her and enjoy all the moments
The Pie in the Face Challenge has made her very happy. She loves watching all the videos and has the biggest smile on her face. Sometimes the little things mean the world. Erin was born on May 18 1992, just missing her Fathers birthday by 2 days. Her favorite colour is Pink and she cant wait to get her new wheelchair in hot Pink….. The mud photo is when I took her to Costa Rica this year, I try and take her on a vacation every year but this past year was tough, as there was a lot she could not do, but she still had a great time.
Last time she had a Gran Mal seizure and quit breathing. I had to revive her.
Erin will now need a port installed to continue with her transfusions. They can no longer find her veins and it is too difficult for her to go through hours of poking trying to find a vein and having the blow. We in the process now of getting a port for her, so she no longer has to go through that. Hope this works much better.
–Erin’s Mom Cindy Moore
Erins Bucket list a trip to Jamaica with her family and caregiver.
Meet Katy Perry
She would love to go on a Disney cruise
You Can Donate To Her Bucket List By Emailing Her Mom: email@example.com