Desiree (Desi)

Desiree (Desi) Buettner 19 years old

February 18, 1998

This slideshow requires JavaScript.

desiree-14My Cag count was 59. My mom had Huntington’s and my grandma did, They both died. When I was born I weighted 2 pounds I had to stay in the hospital until May. I lived with my mom until I was 2 or 3 then I went to foster care. Then when I was 4 my dad took me and we went to Texas. Then when I 7 I went to Iowa with my dad. She does have one positive sibling.
Then my dad met Lacy Nissen. (non hd positive) Then my dad and Lacy had my sister Patience. Then when I was 9 Lacy and my dad had my sister Hannah. Then when I was also 10 my mom died of JHD. Then when I was 11 my dad and Lacy had my sister Rylee. My symptoms are weakness in my legs and arms. Tremors, seizures, trouble with school, I didn’t graduate school, leg and arm pain and slurred speech. My head goes up and down and my eyes blink fast. Desiree was put in a nursing home December 2016. Her Dad visits her. She has a vivid imagination, especially when talking to her she knows how to make up stories.

About Desireedesiree-8

I like to color, listen to music, I love Avril Lavigne and Carrie Underwood I love country too, and to sing. I like to do word search books. I like to read and play on my Kindle . My favorite food is chili and lasagna. My favorite animals are lion and tigers. 

Desiree’s Bucket List.. 16174528_114970735679961_3253441719516979834_n

  • See Carrie Underwood before I die she is my idol

  • same with Avril Lavigne I would love to see her

  •  I also want to jump off a plane before I die

  • Go to Disney World

  • I also want to get a cure for this disease

You Can Email Her Dad At: desiree.buettner16@gmail.com

send cards.jpg

Desiree.jpg

Welcome To jhdkids.com Where You Can Read These Kids Stories And Learn More About JHD And How Different It Is In Kids Than Adults
https://www.youtube.com/curejhd
%d bloggers like this: