Cailey (Cupcake)

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Cailey Shinkonis

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cailey (444)Cailey was born on March 27, 1999.. and diagnosed at age 6. At that time, her Father and I didn’t know there was such a thing as Juvenile Huntington’s Disease. And her pediatrician actually diagnosed her with Asperger’s Syndrome. The neurologist we were referred to recognized her Father’s HD and asked to test Cailey. She’s gone through days of testings. She has Seizures. She’s with her cousins a lot. 

 About Cailey

cailey (358)She loves Monkeys! She is happy and loves to laugh.

She takes bows and waves whenever she has an audience.

She loves to live she Ice Skates through a local program for special needs kids. She can no longer do gymnastics, physically she is able but not mentally. She participates in the Special Olympics (bowling and track and field) and she cailey (319)Plays Baseball as part of the Little League of America’s “Challenger Program” which is for special needs kids she Swims..
She Doesn’t Let jhd Keep Her Down!! She just loves to Play and Laugh and have Fun and be a Kid!! She loves purple and green. She’s also a major fashionista great outfits always

cailey (384)Sept 5, 2019- She was doing cartwheels at school and lost her balance. She fell, landing on her shoulder and elbow. I took her to the ER and they were concerned about a broken elbow due to the swelling. X-ray showed no signs of a break. She is wrapped up pretty tightly. Doctors said if it is still hurting in a week to bring her back and have another X-ray done

Jessica (Cailey)- I think it’s horrible I think the disease is the most horrible thing I’ve ever witnessed.




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