Auggie or Augs, as he is known to his close family and friends, was born on a super sunny May 14th in 2007 at NYU Medical Center in full view of the Statue of Liberty. Both August and his father, Michael Angelo Chinchilla, would eventually test positive for Huntington Disease, a devastatingly incurable, hereditary brain disorder for which there is no current ‘effective’ treatment.
The aggressive neurodegenerative disorder causes the affected individuals’ abilities to walk, think, reason and talk to gradually erode until they leave this life. Imagine if ALS, Parkinson’s and Alzheimer’s were all mixed together and multiplied by a thousand and you will begin to see the slow devastation that is Huntington’s Disease.
August lives with Early Onset Juvenile Huntington’s Disease, one of the rarest forms of the disease. Currently the only JHD elementary kid enrolled in school in the US, he attends a public school in Los Angeles, CA,
He likes to sing, enjoys playdates, building Legos, sharing stories and loving the world around him. Oh, and he has a thing for Star Wars!
June 17, 2019 I just want to take a minute to testify about the glory that is my life. August @auggiepalooza is getting 3 brain surgeries this fall to have wires and electrodes and pacemakers put in his brain, neck and chest UNDER HIS SKIN that will be invisible to the human eye, except for rechargeable button in his chest 👀. It will help to give him back movement he has lost and will give us insight into his seizures. When school starts back up next week, I will be learning how to calculate the data and biofeedback as well as the the ins and out of the circuitry and code for the SAME devices that are going to be put into my kid's body. I tried to talk to people about this in 2014 when he was first diagnosed w/ JHD and people w/ no capacity to think big tried to convince me it was "not possible" or "you're crazy" or "not in his lifetime" or "too expensive". And now, I'm over here all, "I'm about to exceed the ceiling I set for what was possible for him to have and for me to know." 🙌🏾Gonna have to aspire to imagine even more. 😂All those naysayers and doubters....smh. But God heard me all along and “never” only took five years. 😝And I am so grateful and thankful and powered by my purpose to help and do whatever I can for not just my kid but thousands of other children with similar neurodegenerative issues. I giggle sometimes for no reason cause it’s kinda awesome and I’m #SuperBlessed#BlessedAndHighlyFavored #WontHeDoIt #AuggiepaloozaResearchProject#WidowsWhoScience #BlackGirlsCode #NeuroscienceRocks #NeverThoughtIWouldBeHere #DreamBig 😍
On 9/14/2019 at 6:30AM August Gianpiero King Chinchilla will be admitted to Children's Hospital Los Angeles for the first of THREE brain surgeries that will last about six hours. At 9AM in Burbank, CA, I, Captain of #TeamAuggiepalooza, will be participating in #TeamHopeWalk for #HuntingtonsDisease in the hopes of raising $1000 for the #HDSA! If we raise even more, GREAT!! Currently, I am the ONLY person on the team (womp) but am inspired to not just twiddle my thumbs while he's on the operating table but to use this time to help raise money for him and other kids with #JuvenileHuntingtonsDisease. As you may or may not know, #HD took the life of my husband, Michael Angelo Chinchilla, August's Papa, almost six months ago. It's an awful debilitating disease that we fight against every day. I just hope that by participating in this walk that I can help, not just my son, but other families like ours. If you are interested in joining Team Auggiepalooza please PM me nakiah cherry chinchilla on facebook, for more details. Thanks everyone!!!